Last week Wednesday, on October 8th, 2008, President Bush signed into law Senate Bill 1382, The ALS Registry Act, which will create the first ever national patient registry of people with Lou Gehrig’s Disease (ALS). The registry will compile information to help decipher the cause, appropriate treatment, and finally the cure for this horrible disease.
This was a bill that Nick was very passionate about; he posted about this Act on the blog more than once and encouraged us all to write our Congress members to ask for their support in getting this passed. After almost 4 years of advocates lobbying for this bill, it was signed into law late on the afternoon of October 8th. That day may ring a bell for some of you, as that same day, Nick would have turned 29 years old.
Although it is sad that Nick was not here to see the Act that he fought for finally make it into law, it is a tribute that it happened on his birthday.